How do you cope with interstitial cystitis?!


Question: What foods affect you the most? If you eat something "bad", how long does it take you to feel the pain? Any medications that have helped you? I have just been diagnosed and the pain gets to me sometimes.
Answers:
I was dignosed with IC over 2 yrs ago.I find that caffeine, acidic foods/drinks, like citrus, tomatoe etc bother me.Alcohol bothered me the most,(Never a big drinker, but every once in a while I would have a couple) I do not drink at all anymore,it is not worth it.One time a few drinks sent me into a 6 week flare.Elmiron has helped me quite a bit.(Some people it causes stomach problem is, but have found if you tke it out of the capsule it doesn't, as it is not the med, but the capsule it is in.)You might want to get a pain mgmt Dr if you do not have one.I take suboxone for pain and it helps, I take Norco and Naproxen for breakthrough pain.I also take Vistaril,Flomax,valium and or muscle relaxers,and pyridium.You need to have your pain "managed" You do not need to suffer.If your uro is not sympathetic to your pain, find another one, I know I had to at first.I also get bladder distentions with DMSO every 3 months that seem to help with the other symptoms, but not so much with pain.There is a website that has info on IC, and a diet for IC. www.ic-network.com

Other Answers:
Get a drastic change of diet.
And try kyolic Garlic to cleanse ur system.
Best of luck in your treatment. :)

Answers:

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