anyone know where you can get any kind of treatment for pulomanry fibrosis, in u!
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Dr. Paul Noble at Yale University Medical Center has a new treatment for pulmonary fibrosis that was developed about three years ago. He was recommended to me by a pulmonologist in New Jersey who said several of his patients had benefited from the treatment. I saw Dr. Noble in November 2003, and found that my condition is not fibrosis, so I never learned more about the treatment program. You can do a search for Yale New Haven. I have Dr. Noble's number if you want to email me. Good luck for you and your Dad.
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How is the pulmonary fibrosis treated?
The treatment options for idiopathic pulmonary fibrosis are very limited. There is no evidence that any medications can help this condition, since scarring is permanent once it has developed. Lung transplantation is the only therapeutic option available. At times, this diagnosis can be difficult to make even with tissue biopsy reviewed by pathologists with specific experience in this field. Research trials using different drugs that may reduce fibrous scarring are ongoing. Since some types of lung fibrosis can respond to corticosteroids (such as Prednisone) and/or other medications that suppress the body's immune system, these types of drugs are sometimes prescribed in an attempt to decrease the processes that lead to fibrosis.
The immune system is felt to play a central role in the development of many forms of pulmonary fibrosis. The goal of treatment with immune suppressive agents such as corticosteroids is to decrease lung inflammation and subsequent scarring. Responses to treatment are variable. Once scarring has developed, it is permanent. Those whose conditions improve with immune suppressive treatment probably do not have idiopathic pulmonary fibrosis.
The toxicity and side effects of treatments can be serious. Therefore, patients with pulmonary fibrosis should be followed by a lung specialist experienced in this condition. The lung specialist will determine the need for treatment, the duration of treatment, and will monitor the response to therapy along with any side effects. Only a minority of patients respond to corticosteroids alone, so other immune-suppressing medications are used in addition to corticosteroids. These include gamma-interferon, cyclophosphamide, azathioprine, methotrexate, penicillamine, and cyclosporine. The anti-inflammatory medication colchicine has also been used with limited success.
Pulmonary fibrosis can cause decreased oxygen levels in the blood. A decrease in blood oxygen level (hypoxia) can lead to elevated pressure in the pulmonary artery (the vessel that carries blood from the heart to the lungs to receive oxygen), a condition known as pulmonary hypertension, which can in turn lead to failure of the right ventricle of the heart. Therefore, patients with pulmonary fibrosis are frequently treated with supplemental oxygen to prevent pulmonary hypertension.
There is also evidence that patients suffering from pulmonary fibrosis may be at increased risk for blood clots that travel to the lung (pulmonary emboli), and therefore anticoagulation (blood thinning) therapy may be indicated
The National Institute of Health in Bethesda, Maryland is conducting an ongoing clinical trial in the treatment of pulmonary fibrosis. If you are accepted, they may offer help with travel. You can call 1-800-411-1222 or go to the website at Lung Study@Nhlbi.nih.gov
Honestly no medicine works.Anemia if corrected helps carry more oxygen to tissues.Portable oxygen cylinders are helpful.
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