Anyone fimilar with Fibromyalgia?!


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It is thought to be caused by a virus. It causes extreme fatigue, muscle pain and general malaise. Some people recover and some don't. It is not fatal, but does cause problems for those who do not recover, for life. There are a couple rules of thought about treatment. One is vitamin B12 injections monthly and and plenty of rest with a balanced diet. IT IS NOT A FORM OF MS AND IS NOT HEREDITARY. GEESH!

Other Answers:
my mother has it and she has a hard time dealing with it.

My mother has it as well. She sees a physiotherapist and has purchased a special bed and bedding to assist her.

Personally, I feel this is just a response that doctors give their patients when they can't figure out what is REALLY wrong with them.

Likewise, my mom has it as well.it's a form of MS and can be very debiliating for her.also they say it is hereditary, so I watch for signs in myself

Yes. It is a disease of the connective tissue and nerve endings. It also affects muscle. It is characterized as an autoimmune disease. Pain can be caused by touch and from change in air temperature some ppl have pain all the time There is no cure. Pain medication can help as do warm compresses or warm showers. It helps to wear a lite jacket or sweater because you can always take it off if you feel hot and you will have the protection from sudden change in wind velocity or change in temperature.
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I have this condition

My mother-in-law has this and I thought this website had helpful information.
Source(s):
http://health.yahoo.com/ency/healthwise/hw196365

MAYBE THIS WEBSITES WILL HELP:
Fibromyalgia Links
VforVendetta. FIBROMYALGIA WEBSITE. Welcome to our Site! FIBROMYALGIA can be like hitting a BRICK WALL. Sometimes it seems there will never be an end to the struggle just to make it day to day. . come back and check out all of the great Fibromyalgia References. Thanks to all those who have offered www.hutzley1.tripod.com/fibrom.
www.fibroandfatique.com
GOOD LUCK AND BEST WISHES
Source(s):
fibromyalgia

i have fibromialgia and mine moves from spot to spot it hurts when some one touches me

Don't wish to contradict anyone, but yes, it is a real problem. 20 years ago, they called it "fibromyocitis" thinking it was an inflamatory disease, but NSAIDs didn't help, so it became fibrymyalgia -- "pain of unknown origin in the fibrous tissue" Most physicians today are beginning to think it is a sleep disorder -- that without REM sleep, tissue never really relaxes. Usually it begins in the trapesius muscles in the back, then migrates to all the connective tissue in the hips, knees, elbows, and shoulders -- hands, ankles are rarely involved. Muscle relaxants (Robaxin) pain killers (darvocet) and sleep meds(stuff like Ambian) help many. Gentle Palates, and phy. Th. at the gym are also useful. Some times tranquilizers (lorazapam) also helps. It's a difficult disease to control -- something works a little often, but nothing works all of the time. The pain is real. What tends to really set it off are things like sitting too long in one place, straining the back lifting, too hard of a workout at the gym. It is most common among women. Some researchers are even thinking that it is a result of lead in our environment, but so far that is unproven. Their claim is that the human body has, because of tetra-ethyl lead in gasolines (now banned) 604 times the amount of lead in it prior to the introduction of leaded fuels. Most mammals do not do well with metals in the body -- mercury, lead, silver, cadmium, excessive copper, selenium --- are the ones most poorly tolerated, iron, in small amount is actually needed. So, no one really has come up with what causes FM, but the above medications appear to help some people. And remember, what may work for some, does nothing for others. It is a frustrating condition both for the physician, and for the lady who has it,

my father has it, he has a lot of upper back and neck pain, he is tired a lot, he uses a heating pad to lay on, it helps him a lot. He takes a lot of medication and does activities like yoga and ti chi, those help too. It occurs more often in women than men and usually in people in their 30s to 50s. My father got it when he was in his late 30s.

Too familar. I have FM. I was to the point that I couldn't even hug my children because touching hurt too badly. When my son was 3 and would climb in my lap to be cuddled, it was torture.
I was on topamax for a year, prescribed for my migraines and within a few days I could cuddle and hug my children again. It blocks the pain receptors in the brain, without that swimmy headed feeling of narcotic pain killers.
Researchers know there is a connection with insomnia but they do not yet know if the sleep deprivation is a cause or an effect from the fibromyalgia.

Yes. I have fibro.

1. It is NOT herediatary.
2. It is NOT a form of MS.
3. It is NOT a disease. It is a SYNDROME.

Fibro is thought to be caused possibly by viral infection, or trauma such as a car accident (I was in three rear-end car smashes in the space of four years). It's not clear whether it's something that develops, or whether things like a virus or trauma just trigger an underlying problem.

What *is* known, is that sleep is interrupted - and without proper sleep, the body can't heal and hurts even more - and of course, the more pain you're in, the harder it is to sleep.

There is no cure, but it is said that gentle exercise helps. I've yet to find anything that I'm physically capable of doing. My doctor has me on strong painkillers (constant doses of sustained-release Tramal/Tramadol) as well as additional Tramal, and other analgesics (codeine, etc.). I also find that a soft but very firm matress and a chiropractic pillow help. Hot showers are my friend.

It's also said that while it's not fully understood how, fibro is related to arthritis, which is why many fibro patients are sent to rheumetologists (at least, that's been my experience here in Australia).

This link has more information that may be of use to you: http://www.fmaware.org/fminfo/brochure.htm

P.S.
To Honeysuckle: Fibro isn't what doctors tell patients when they don't know what's wrong. Fibro doesn't mean "It hurts" - there are specific diagnostic criteria. It is not a diagnosis of exclusion. See the above link and scroll down to "How is it diagnosed?"
Source(s):
Experience.

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hi, i have it and it not a very nice thing to have i am still comming to terms with it when i asged my doc more about it she told me to go to the libery and read up on it which i still am i have let cups of hot tea fall many a time because the cup of tea felt to heavy for me i just sat and cryed as i felt so stupid as many a woman or man who suffer with fms know , nearly put my house on fire when i pluged in my deep fat fryer and then put the ring of the cooker on under it because i forgot it was elect so i right down things now even when i cooking hope some day they find some form of relive for us take care all u suffers
Source(s):
FIBROMYALGIA . COM
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